We are NFU: Neonatal Follow-Up Special Start
We offer community based, comprehensive case management services, for medically fragile children, ages 0-3 years, and their families within Alameda County.
We have a multi-disciplinary team working with parents to help them develop the skills and confidence to meet the complex medical and developmental needs of their children.
We provide intensive family support services so that families can be provided information and guidance with the special challenges of having a baby who has been hospitalized.
We provide bi-lingual and bi-cultural case management services available in Spanish and Cantonese.
We work in collaboration with our HRIF (High Risk Infant Follow-up) clinic…but we are a separate program.
Primarily grant funded through the “Starting Out Strong” collaborative of home visiting services through Alameda County Public Health Department.
NFU Mission Statement
To optimize the physical, developmental, and socio-emotional well-being of medically fragile children and their families via a multi-disciplinary team that provides comprehensive case management services to improve patient outcomes, and addresses the impact of social determinants of health on the family unit.
Our Six Basic Tenets in our Approach with Families
- We provide relationship-based case management services- meaning attention is given to a parallel process: a respectful, nurturing relationship between families and case managers is an intervention in itself, and parallels the aimed-for quality of relationships between babies and parents/caregivers
- We provide flexible, family-driven approaches to service delivery, in which case managers and consultants both anticipate and creatively respond to needs
- We practice trauma-informed care - a program model that sees the experience of having a premature and/or medically fragile baby as potentially traumatic, the life circumstances of many families as stressful and overwhelming, and understanding the ways trauma can affect daily life.
- We provide culturally-responsive interventions, in which the case manager and consultants considers, values and respects the family culture and delivers services accordingly
- We provide access to a multi-disciplinary team-the Special Start program that allows for a team approach to services, tailored to the needs of each baby and family
- We believe that services should go “Beyond baby”; the recognition that we are working toward the security, stability and well-being of the entire family
How It Works
Once a NICU referral is received and eligibility is confirmed…..
Step 1- A primary Case Manager is assigned
Step 2- Contact is made between the caregiver and the Case Manager first typically by phone to discuss the program and confirm interest.
Our program is voluntary
Step 3- If parent is interested then a face to face visit is set up. During the first face to face visit the Case Manager will again review the program and obtain a written consent from the primary caregiver to participate in the program, and this allows Special Start to receive medical information and communicate with providers.
Step 4- The primary Case Manager will complete an initial comprehensive assessment of the patient and family. This includes assessing medical, developmental, and psychosocial factors. This assessment will determine if additional team members are needed (Nursing/SW/PT/IDS/Nutrition)
What We Do
Comprehensive Case Management -
- Medical monitoring
- Reinforcing complex medical instructions
- Assessing for signs/symptoms of illness and communicating with appropriate medical team
- Assess and address developmental challenges caused by medical illness and/or surgical interventions
- Growth/Weight monitoring
- Reinforce provider education on:
- Medication management
- Specialized feeding instructions
- Other medical interventions (sternal precautions, wound mgt, etc)
- Mental Health Support
- Depression screening
- Brief therapy (anxiety, trauma, crisis intervention)
- Increase confidence of parents ability to care for child
- Referrals/Linkages to community agencies
- Improve access to care
- Improve compliance with medical regimen
Special Start - Eligibility
- NICU graduate **(non-NICU can be considered in high risk circumstances)
- Have at least 2 medical risk factors (not an inclusive list):
- Prematurity (less than 1500 grms or over 15o0 grms w/ 2 medical risk factors)
- Assisted ventilation > 48 hrs during first 28 days of life
- Hx seizures activity or other neurological abnormalities
- Congenital Heart Disease
- Severe birth depression
- Genetic syndromes
- Babies d/c’d with DME (ng/g-tube;O2;trach)
- Have at least 2 social/ economic/ environmental risk factors (not an inclusive list)
- Recent Immigrant and/or language barriers in accessing care
- Socially isolated and/or lack of social/family support
- Difficulty coping with child’s medical condition
- Postpartum Depression and/or other mental health concerns
- Limited resources (food/housing) to meet needs
- Client is age 0-3 years old
- Live in Alameda County
- Have active Medi-cal ** (Limited visits available for private insurance patients)
How to Refer to Special Start?
- Referrals from Neonatal Intensive Care Units are given priority, but referrals from Clinics, Pediatricians, PNP's, or other community-based providers currently are also accepted for review
- All referrals must be submitted to the NFU Referral Coordinator Fran Merriweather, LCSW ([email protected]) or Program Manager, Sharon Leno, LCSW ([email protected]) for eligibility review.
- Referrals can be sent via email or fax, being sure to include all relevant medical and psychosocial information (NICU H&P/Discharge Summary; developmental evaluations; general list of concerns; psychosocial risk factors; demographics and insurance information)
NFU Main Phone Line is 510-428-3006
NFU Fax is 510-601-3932
Our Staff
Nurse Clinicians
- Consult and collaborate with primary care and specialty providers in coordination of care, includes attending appointments with clients to help families understand medical needs and follow-up plan
- Facilitate access to prescription medications, refills, formula, equipment, etc., includes supporting parents with navigation of health care systems and supply companies
- Monitor medical conditions, including growth and weight, providing consultation and support with specialized feeding plans and instructions
- Assess medical needs and urgent care situations, providing medical intervention and advice to minimize unnecessary hospitalization and ER visits
- Assess developmental needs, and make referral and linkage to early intervention services and community resources
- Assess for barriers to appointments, and assist in coordinating access to appointments
- Provides parent support, education, and advocacy for client and families to ensure optimal health outcomes
Julia Chan, RN, MSN
I started my nursing career at Neonatal Follow Up as a graduate student intern completing my Master’s of Science in Nursing from Samuel Merritt University, Oakland. I graduated with a Bachelor’s Degree in Biological Sciences from UC Davis. I joined the NFU team in 2002, as a bilingual, bicultural practitioner, dedicated to serving the diverse families in Alameda County with complex medical, developmental, and psychosocial challenges. To support my work in the community, I have participated in Asian Service Provider workgroups, Harris Early Childhood Mental Health Training program, and also certified as a Child Passenger Safety Technician volunteering at hospital and community events. As a Bay Area native and lifelong resident, I am proud to be on a trans-disciplinary team serving the needs of this diverse community, supporting high-risk families with NICU babies through the lens of cultural understanding and awareness of the context of each individual family. This truly integrated approach at NFU to improve health outcomes, develop long-term relationships, and have a positive impact in the earliest stages of a child’s life has been the most professionally fulfilling in my career.
Kathi Lampkin, RN, MSN, FNP
I began my initial nursing career in 1983 working in Children’s Hospital NICU. As a NICU Nurse this allowed me the opportunity to learn and develop many advanced practice skills in a variety of roles as a team leader, preceptor, charge nurse, transport nurse, ECMO specialist and Assistant Nurse Coordinator. After many years in the NICU I desired to expand my nursing knowledge therefore, in 1999 I transitioned to the Neonatal Follow-Up Program and returned to graduate school where I completed my Master’s of Science in Nursing Degree and Family Nurse Practitioner Certification from Samuel Merritt University. I continue to utilize my diversified advanced practice nursing skills in my role as a Nurse Clinician. The NFU Program is a unique program which allows me as a practitioner to provide care and intervention for our medically fragile infants and children who need specialized intensive medical, developmental, and psychosocial follow-up and to work with our dynamic multidisciplinary NFU staff.
I am a passionate patient advocate. As a practitioner I bring a variety of experience to share with my patients and their families in a culturally sensitive manner. I am able to assist my families feel valued, respected, and comfortable with continuing to maintain medical care post discharge for their children. These components also allow them to develop patient advocacy and medical literacy for their child, hopefully for many years to come.
Blanca Aranda-Cox, RN
I consider myself a native of the Bay Area, as my family immigrated here from Mexico the week that I turned 9 years of age. I lived in Oakland until I graduated from HS. In 2000, I graduated from the University of South Florida, Tampa with my bachelor’s in nursing and returned to the Bay where I began my nursing career at Children’s Hospital Oakland. By the end of 2001 I had my dream job working with families and babies as a home visitor for the Neonatal Follow-up Program. I worked as a home visitor for six years and in 2009, I transitioned to the role of Clinic Coordinator for the High-Risk Infant Follow up Clinic. In 2015, I transferred to the Orthopedic department with the intention of increasing my skill set and knowledge of long-term outcomes for the patients who start out with challenges, such as those who participate in both the Neonatal Follow-up and High-Risk Infant Follow-up clinics. In 2022, I returned to the work I’m most passionate about that provides home visiting to babies and families living in a community that I’m very proud to be from. As a Nurse Clinician, I am able to meet the patients/families wherever they find themselves: at their homes, medical appointments, in community settings such as the library or park, or social services offices. As a bilingual, multicultural provider, I can address specific needs of the immigrant population from Mexico, Central and South America
Chelsea Ratilainen, RN, MSN, CRRN
I grew up in Richmond, California, and I am dedicated to giving back to my East Bay Community. I earned an associate degree in nursing from City College of San Francisco, a bachelor's degree in nursing from Cal State East Bay, and a master's degree in nursing from University of San Francisco. The foundation of my nursing practice was built in Pediatric Rehabilitation where I devoted myself to helping children reach their highest level of function. My approach to pediatric nursing has always been centered around the whole child. I deeply value a multidisciplinary approach to addressing a child's cognitive, physical, developmental, social and emotional needs, supporting their families and caregivers, and engaging their community to foster the best possible outcomes.
I am humbled and grateful to be a part of the Special Start team and I am passionate about providing this essential support to my community.
Clinical Nutritionist
- Assist with weaning off NG/G-tube feedings
- Close monitoring of children with Failure To Thrive or weight gain issues
- Parent education on complex feeding routines
Vanessa Kobza, MS, RD, CSP
Pediatric Dietitian
As a pediatric dietitian with 7+ years of experience and an expertise in neonatal nutrition, I was excited to join the Special Start team in March 2020. I work closely with our case managers and families to ensure our patients receive the nutrition they need for optimal growth and development. I am passionate about helping our patients overcome nutritional challenges and feeding difficulties while fostering a positive parent-child feeding relationship.
Physical Therapist
- Promotes caregiver-infant relationship
- Addresses and mitigates atypical developmental trajectories influenced by medical illnesses and/or surgical interventions.
- Provides PT treatments to patients, including play or interaction based physical handling and facilitation, as well as environmental adaptations including use of equipment such as splints and positioners.
- Assists families, NFU staff, and other medical or community providers in coordination of PT/developmental services with available public and private community organizations.
- Offers bridge therapy for those infants found eligible for ongoing services with community agencies such as RCEB, and CCS MTU PT while awaiting initiation of those services.
Jennifer Murphy Sims, PT, DPT, PCS
Dr. Murphy Sims is a physical therapist and pediatric clinical specialist embedded in the neonatal follow-up and early childhood mental health teams at UCSF Benioff Children’s Hospital Oakland. She is endorsed as an infant and early childhood mental health specialist, and reflective practice facilitator. She is a home visitor serving families with infants and young children with medical and developmental complexity, as well as providing supervision, consultation, and training.
Clinical Social Workers
- Addressing barriers to care
- Assisting with concrete needs
- Post-Partum depression screening
- Mental Health support and referrals
- Referral & Linkages to community partners
- Developmental assessments
- Monitor growth, weight and development
- Attends most medical appointments as well as community partner visits (SSI/TANF/IEP’s)
Fran Merriweather LCSW
I started at BCHO in 1991, and began working with the NFU program in 1998. Before I started at NFU, I had never worked in a home visiting program that focused on the physical, developmental, and emotional well-being of the baby and the family. Working at NFU has strengthened my understanding and appreciation of the importance of supporting caregivers so that they can support their children in the ways that are meaningful to them. I am still awed by the willingness of families to share their lives with us and the resiliency that is on display constantly as families navigate challenges. I am equally awed by the dedication of my colleagues to the families on whose behalf they work. The work is inspiring, challenging, and necessary.
Martha Rea, LCSW
I started at NFU on February 1, 2000 after receiving a call from a Social Worker who was on staff asking me if I might be interested in interviewing for a position that was available. Suffice it to say that I was offered the position and here I am 20 years later and still feeling tremendous gratification from the work that I do with primarily Spanish-speaking, recent immigrant babies and their families! Helping families cope with the challenges that their medical fragility, socio-economic status, and ethnic identity bring them is very rewarding for me as I help in their growth and well-being on many levels - medical, developmental, social, and emotional!!
Peggy Busher, LCSW
I am very grateful to be part of the Neonatal Follow Up/ Special Start Team. I came to CHO in 1998 to a position that was shared between the Parent Infant Program and NFU. I had been previously working as a Regional Center Case Manager since getting my MSW degree from San Francisco State University in 1988. I made a transition to working full time for Special Start in 2001. I am a bilingual Spanish speaker and I have been working with immigrants my entire career and find that there is still so much to learn! I enjoy advocating for clients and their families in the educational and public benefits settings. I completed the Harris infant Mental Health Training about 15 years ago. I really appreciate the Sociocultural approach that informs how we provide services to our families. I have enjoyed facilitating support groups for mothers of children with special needs, together with my colleague Martha Rea and for mothers in the Parent Infant Program. I appreciate all my very passionate hard working colleagues and continue to learn from them. I am also inspired by all the families with whom I have had the honor to work.
Perla De LaTorre, ASW
Clinical Social Worker
I began working at UBCHO after completing the hospitals Critical Care department internship. With great passion both personally and professional, I transitioned to the outpatient community home visiting early intervention program known as NFU. As a Clinical Social Worker, I utilize a client centered, culturally sensitive, relationship, and strength -based approach to provide on-going case management and crisis supportive services to NICU graduates. I assist families with navigating the medical system of care by providing home based supportive services to help decrease health disparities among vulnerable patients. I believe that providing access to supportive services for women and children is critical in ensuring that medical fragile babies receive quality medical care during and after discharge from the hospital. My educational background includes a master's degree in social work with a concentration in Community Mental Health and BS Degree in Health Science with a Pre-Clinical concentration from Cal State University East Bay in Hayward.
Sharon Leno, LCSW
Manager
It has been my great privilege to be the Manager of the NFU program, as well as a Clinical Social Worker with UCSF Benioff Children’s Hospital Oakland since 2007. I was drawn to this program because in my 25-year career, working in multiple states throughout the country in various medical centers, I had never seen anything as unique and impactful as the NFU team and their mission. The children and families that graduate from our Neonatal Intensive Care units have done so with courage and strength. But such an experience is traumatic, and families can be at their most vulnerable during this joyful but often frightening transition time from hospital to home. Our staff support families through this transition and beyond. As the Manager, my role is to help support our staff as they engage in this extraordinary work and ensure that it can continue for many years to come.
Clinical Psychologist
- Acts a primary case manager and mental health consultant
- provides Bayley developmental assessments in HRIF
Eren Berkenkotter, PsD
I have worked for our Special Start home visiting program and our Neonatal Follow-Up Clinic for NICU graduates since 1987. Working with families when they bring their babies home from the Neonatal Intensive Care Nursery (NICU) is very rewarding. I have met families from all over the world, at a special time in their life when they first bring their baby home. After the NICU, parents are scared about their baby’s health and well-being, and receiving personal support from a health professional can make a big difference. When babies have complex medical needs, having an advocate that sees and knows all of the healthcare systems, government agencies, and the home care needs can make a big difference. I am grateful to our hospital and our great team of co-workers.
Infant Development Specialist
- Address developmental concerns and help identify needs to improve developmental outcomes
- Support families, NFU staff, and other providers in the understanding of an infant and toddler’s developmental world (motor capacities, language/communication, social-emotional framework, adaptive skills, play abilities) and identify activities or supports needed to promote optimal development
- Promote the caregiver-infant/toddler relationship using play-based themes
- Identify referral/coordination of medical services, therapeutic evaluations, and/or other community organizations
Office Assistants-Intake team
- Recipients of all intake referrals
- CCS transportation authorizations
- Supports Case Mgrs with client appts.
- Supports HRIF clinic
- Facilitates TCM (Targeted Case Mgt) billing
Asia Page
Cecilia Estrada
I am an Office Associate for our Neonatal Follow Up /Special Start.
I have been working at UCSF Benioff Childrens Hospital Oakland for 13 years. Currently I oversee numerous tasks that help facilitate the amazing work our department provides to our 0-3 age group. I am also a Targeted Case Management specialist and I am and a Certified Medical Assistant that has worked in pediatrics for 12 years. I love what I do, and the amazing staff I work with and what our program stands for.